Allied Health Professionals Day
Nurses stream preliminary programme
| Ultrasound Workshop | ||
|---|---|---|
| 12:00 – 13:00 | Registration and lunch | |
| 13:00 – 15:00 | JOINT SESSION: HOW NEW TREATMENTS ARE CHANGING THE SCENARIO | |
|---|---|---|
| 13:00 – 13:05 | Opening message | Cedric Hermans Thierry VandenDriessche |
| 13:05 – 13:15 | Setting up the scene | Maj Friberg Birkedal |
| 13:15 – 13:35 | Factor Treatment vs Non-Factor Treatment | Marlene Beijlevelt Dorian Lippens |
| 13:35 – 13:55 | Everybody should have (or not) gene therapy! | Triona Byrne |
| 13:55 – 14:15 | Patients with haemophilia can be treated with the same physiotherapy treatment as non-haemophiliac patients | Anne Juanos Nathalie Grinda |
| 14:15 – 14:45 | Panel Discussion and Q&A | |
| 14:45 – 15:00 | Discussion and wrap-up | |
| 15:30 – 16:10 | SESSION 1 | |
|---|---|---|
| SLAM | Celine Chenuel Renester Fenton | |
| 15:30 – 15:35 | Welcome | |
| 15:35 – 15:41 | SLAM 1 | |
| 15:41 – 15:47 | SLAM 2 | |
| 15:47 – 15:53 | SLAM 3 | |
| 15:53 – 15:59 | SLAM 4 | |
| 16:00 – 16:10 | Q&A | |
| 16:10-17:20 | SESSION 2 | |
|---|---|---|
| Frailty in bleeding disorders | Mary Kavanagh Wandai Maposa | |
| 16:10 – 17:10 | Frailty in bleeding disorders | William McKeown Cathy Harrison |
| 17:10 – 17:20 | Q&A | |
| 17:20 – 17:50 | Break | |
| 17:50 – 19:00 | SESSION 3 | |
|---|---|---|
| Masterclass: Patient-Reported Outcome Measures (PROMs) and Patient-Reported Experience Measures (PREMs) | Malin Axelsson Linda Myrin Westesson | |
| 18:35 – 18:45 | Q&A | |
| 18:45 – 19:00 | Star nurse & SLAM winner and closing remarks | Maj Friberg Birkedal |
| 19:00 – 21:00 | Networking reception | |
Physiotherapy stream preliminary programme
| Ultrasound Workshop | ||
|---|---|---|
| 12:00 – 13:00 | Registration and lunch | |
| 13:00 – 15:00 | JOINT SESSION: HOW NEW TREATMENTS ARE CHANGING THE SCENARIO | |
|---|---|---|
| 13:00 – 13:05 | Opening message | Cedric Hermans Thierry VandenDriessche |
| 13:05 – 13:15 | Setting up the scene | Maj Friberg Birkedal |
| 13:15 – 13:35 | Factor Treatment vs Non-Factor Treatment | Marlene Beijlevelt Dorian Lippens |
| 13:35 – 13:55 | Everybody should have (or not) gene therapy! | Triona Byrne |
| 13:55 – 14:15 | Patients with haemophilia can be treated with the same physiotherapy treatment as non-haemophiliac patients | Anne Juanos Nathalie Grinda |
| 14:15 – 14:45 | Panel Discussion and Q&A | |
| 14:45 – 15:00 | Discussion and wrap-up | |
| 15:30 – 16:10 | SESSION 1 | |
|---|---|---|
| Sebastian Lobet | ||
| 15:30 – 15:35 | Welcome | |
| 15:35 – 15:50 | RSO-Surgery discussion | |
| 15:50 – 16:10 | Outreach programme | Jess Hedden Gareth Swann |
| 16:10 – 17:20 | SESSION 2 | |
|---|---|---|
| SLAM | Merel Timmer | |
| 16:10 – 16:15 | Introduction of the session | |
| 16:15 – 16:25 | SLAM 1 | |
| 16:25 – 16:35 | SLAM 2 | |
| 16:35 – 16:45 | SLAM 3 | |
| 16:45 – 16:55 | SLAM 4 | |
| 16:55 – 17:05 | SLAM 5 | |
| 17:05 – 17:20 | Q&A | |
| 17:20 – 17:50 | Break | |
| 17:50 – 19:00 | PSYCHOSOCIAL PROFESSIONAL – PHYSIOTHERAPY JOINT SESSION | |
|---|---|---|
| Moving beyond fear | Lotte Haverman Marie Katzerová | |
| 17:50 – 18:10 | From pain to memory: How traumatic pain experiences shape current pain perception | Anna Wells |
| 18:10 – 18:30 | From memory to recovery: Using EMDR to address pain-related trauma | |
| 18:30 – 18:45 | Q&A | |
| 18:45 – 19:00 | Closing remarks | |
| 19:00 – 21:00 | Networking reception | |
Psychosocial professionals stream preliminary programme
| Ultrasound Workshop | ||
|---|---|---|
| 12:00 – 13:00 | Registration and lunch | |
| 13:00 – 15:00 | JOINT SESSION: HOW NEW TREATMENTS ARE CHANGING THE SCENARIO | |
|---|---|---|
| 13:00 – 13:05 | Opening message | Cedric Hermans Thierry VandenDriessche |
| 13:05 – 13:15 | Setting up the scene | Maj Friberg Birkedal |
| 13:15 – 13:35 | Factor Treatment vs Non-Factor Treatment | Marlene Beijlevelt Dorian Lippens |
| 13:35 – 13:55 | Everybody should have (or not) gene therapy! | Triona Byrne |
| 13:55 – 14:15 | Patients with haemophilia can be treated with the same physiotherapy treatment as non-haemophiliac patients | Anne Juanos Nathalie Grinda |
| 14:15 – 14:45 | Panel Discussion and Q&A | |
| 14:45 – 15:00 | Discussion and wrap-up | |
| 15:30 – 16:10 | SESSION 1 | |
|---|---|---|
| Family-focused care | Grainne O’Brien | |
| 15:30 – 15:50 | Generational trauma | Carlijn de Roos |
| 15:50 – 16:10 | Case study | Gloria Rooney |
| 16:10 – 17:20 | SESSION 2 | |
|---|---|---|
| PROSA in Practice | Karolien Bartels | |
| 16:10 – 17:05 | What if you had to get those injections? A Multidisciplinary approach to needle-related anxiety | Lieselotte Cremers Mathise Hofmans |
| 17:05 – 17:20 | Q&A | |
| 17:20 – 17:50 | Break | |
| 17:50 – 19:00 | PSYCHOSOCIAL PROFESSIONAL – PHYSIOTHERAPY JOINT SESSION | |
|---|---|---|
| Moving beyond fear | Lotte Haverman Marie Katzerová | |
| 17:50 – 18:10 | From pain to memory: How traumatic pain experiences shape current pain perception | Anna Wells |
| 18:10 – 18:30 | From memory to recovery: Using EMDR to address pain-related trauma | Carlijn de Roos |
| 18:30 – 18:45 | Q&A | |
| 18.45 – 19.00 | Closing remarks | |
| 19:00 – 21:00 | Networking reception | |
| 08:30 – 09:00 | WELCOME AND INTRODUCTION | Cedric Hermans Thierry VandenDriessche |
|---|---|---|
| 09:00 – 10:30 | MDT SESSION: CLINICAL PRACTICE: THE RBD CLINIC IN 2027 | Ana Boban Cedric Hermans |
| 09:00 – 09:10 | AHP Day Recap | Maj Friberg Birkedal Marie Katzerová Christina Burgess |
| 09:10 – 10:10 | Clinical Practice Redefined: The Inherited Bleeding Disorders Clinic in 2027 | Jan Blatny |
| 10:10 – 10:30 | Open discussion | |
| 10:30 – 11:00 | Coffee break/Poster viewing |
| 11:00 – 12:00 | ORAL COMMUNICATIONS: INVESTIGATOR-LED CLINICAL AND SCIENTIFIC RESEARCH | Wolfgang Miesbach Thierry VandenDriessche |
|---|---|---|
| 11:00 – 11:10 | Oral communication 1 | |
| 11:10 – 11:20 | Oral communication 2 | |
| 11:20 – 11:30 | Oral communication 3 | |
| 11:30 – 11:40 | Oral communication 4 | |
| 11:40 – 11:50 | Oral communication 5 | |
| 11:50 – 12:00 | Oral communication 6 | |
| 12:00 – 13:30 | Lunch break/Poster viewing |
| 09:00 – 10:00 | SESSION 1: HAEMOPHILIA ACROSS LIFE AND DISEASE SEVERITY | Niamh O’Connell Veerle Labarque |
|---|---|---|
| 09:00 – 09:20 | Starting Early: Haemophilia Management in Newborns and Infants | Manuel Carcao |
| 09:20 – 09:40 | Treatment Selection in Older Patients with Haemophilia | Quentin Van Thillo |
| 09:40 – 10:00 | Women and Girls with Haemophilia and Rare Bleeding Disorders: What Has Changed, What Must Change | Karin Van Galen |
| 10:00 – 10:30 | Coffee break/Poster viewing |
| 10:30 – 12:00 | EAHAD-ISTH JOINT SESSION: NEW TREATMENT OPTIONS | Ana Boban Wolfram Ruf |
|---|---|---|
| 10:30 – 10:52 | Next-Generation Bispecific Antibodies in Haemophilia A: Mechanistic Differences and Clinical Implications | |
| 10:52 – 11:15 | Rebalancing Agents in Haemophilia: Positioning, Target Populations, and the Thrombosis Debate | Robert Klamroth |
| 11:15 – 11:37 | Beyond Half-Life: Revising the Classification of Factor VIII Concentrates | Cedric Hermans |
| 11:37 – 12:00 | Redefining Prophylaxis and ABR in 2027 | Johnny Mahlangu Alok Srivastava |
| 12:00 – 13:00 | Lunch break/Poster viewing/EAHAD Annual General Meeting |
| 13:00 – 14:00 | SESSION 3: LABORATORY CHALLENGES | Samantha Gouw Marie-Astrid van Dievoet |
|---|---|---|
| 13:00 – 13:20 | Can Thrombin Generation Define FVIII Equivalence? | Yesim Dargaud |
| 13:20 – 13:40 | Genetics and Next-Generation Sequencing in Haemophilia and Rare Bleeding Disorders | Keith Gomez |
| 13:40 – 14:00 | Emerging Diagnostic Technologies in Inherited Bleeding Disorders | Waander Van Heerde |
| 14:00 – 14:30 | Coffee break/Poster viewing |
| 14:30 – 16:00 | SESSION 4: MUSCULOSKELETAL (MSK) HEALTH | Roberta Gualtierotti Catherine Lambert |
|---|---|---|
| 14:30 – 14 :45 | Physiotherapy in Haemophilia: Two Decades of Progress in Europe | David Stephensen |
| 14:45 – 15 :00 | Optimizing Pain Management | Nathalie Roussel |
| 15:00 – 15:15 | Synovitis-Free Joints: A Treatment Goal in Haemophilia | Matteo Di Minno |
| 15:15 – 15:30 | From Protection to Performance: Physical Activity in Haemophilia | Sébastien Lobet |
| 15:30 – 15:55 | Q&A/Panel Discussion | |
| 16:00 – 16:15 | Coffee break/Poster viewing |
| 16:15 – 17:15 | SESSION 5: EAHAD ACTIVITIES | Jan Blatny Yesim Dargaud |
|---|---|---|
| 16:15 – 16:25 | EUHASS | |
| 16:25 – 16:40 | Principles of Psychosocial Care in Gene Therapy | |
| 16:40 – 16:50 | A European Curriculum for Nurses Working in Haemophilia | Mary Kavanagh |
| 16:50 – 17:00 | E-Learning Activities | Yesim Dargaud |
| 17:00 – 17:10 | Very Rare Coagulation Factor Deficiencies | Saskia Schols |
| 17:10 – 17:15 | Q&A |
| 17:15 – 17:55 | SESSION 6: 2007–2027: 20 years of transformation in haemophilia care and EAHAD AWARDS | Ana Boban Cedric Hermans Thierry VandenDriessche |
|---|---|---|
| 17:35 – 17:45 | EAHAD Lifetime achievement award 2027: Philippe De Moerloose | |
| 17:45 – 17:55 | EAHAD Lifetime achievement award 2027: Mike Makris | |
| 17:55 – 18:05 | Poster Awards and 2026 Research Grants Awards |
| 08:30 – 10:00 | SESSION 7: SLAM | Niamh O’Connell Sophie Susen |
|---|---|---|
| 08:30 – 08:39 | SLAM 1 | |
| 08:39 – 08:48 | SLAM 2 | |
| 08:48 – 08:57 | SLAM 3 | |
| 08:57 – 09:06 | SLAM 4 | |
| 09:06 – 09:15 | SLAM 5 | |
| 09:15 – 09:24 | SLAM 6 | |
| 09:24 – 09:33 | SLAM 7 | |
| 09:33 – 09:42 | SLAM 8 | |
| 09:42 – 09:51 | SLAM 9 | |
| 09:51 – 10:00 | SLAM 10 | |
| 10:00 – 10:30 | Coffee break/Poster viewing |
| 10:30 – 11:30 | SESSION 8: LATE BREAKING SESSION | Ana Boban Cedric Hermans Thierry VandenDriessche |
|---|---|---|
| 10:30 – 10:45 | Late breaking session 1 | |
| 10:45– 11:00 | Late breaking session 2 | |
| 11:00 – 11:15 | Late breaking session 3 | |
| 11:15 – 11:30 | Late breaking session 4 |
| 11:45 – 12:45 | SESSION 9: GENE THERAPY AND GENE EDITING | Maria Teresa Alvarez Roman Michiel Coppens |
|---|---|---|
| 11:45 – 12:05 | Uptake and duration of Gene Therapy for Hemophilia B | Wolfgang Miesbach |
| 12:05 – 12:25 | Gene Editing in Haemophilia: The Next Curative Frontier | Thierry VandenDriessche |
| 12:25 – 12:45 | Is the Revival of Gene Therapy in Haemophilia A underway? | Lindsey George |
| 12:45 – 13:45 | Lunch break |
| 13:30 – 14:00 | AROSENIUS LECTURE: GENE THERAPY | Alexander Gatt |
|---|---|---|
| 13:30 – 14:00 | Amit Nathwani |
| 14:00 – 15:20 | SESSION 10: VON WILLEBRAND DISEASE AND RARE BLEEDING DISORDERS | Pratima Chowdary Rezan Kadir |
|---|---|---|
| 14:00 – 14:25 | VWF Multimers in VWD: Diagnostic Refinement or Clinical Relevance? | Roger Schutgens |
| 14:25 – 14:55 | DEBATE: Heavy Menstrual Bleeding: A Haematological or Gynaecological Disorder? | Michelle Lavin |
| 14:55 – 15:20 | Inherited Fibrinogen Disorders: From Genetics to Clinical Care | Alessandro Casini |
| 15:20 – 15:45 | CLOSING REMARKS AND SAVE THE DATE FOR EAHAD 2028 | Cedric Hermans Thierry VandenDriessche Santiago Bonanad |