Allied Health Professionals Day

Allied Health Professionals Day | Preliminary Programme

timetitle
12:00 – 13:00Registration and lunch
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13:00 – 13:45JOINT SESSION:
NEW THERAPIES: How it affects the role of an AHP
13:00 – 13:15Welcome
Short introduction of all new therapies
Robert Klamroth
13:15 – 13:55Panel discussion with members of the Multidisciplinary TeamChair: Lotte Haverman
Panellists TBA
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14:00 – 15:15SESSION 1
Non-Factor Replacement
Maj Friberg Birkedal
14:00 – 14:05IntroductionNanda Uitslager
14:05 – 14:25Pharmacology of non-factor replacement therapiesMarlene Beijlevelt
14:25 – 14:40Nurse’s experience of changing patient to non-factor replacement treatment regimens Tami Barazani
14:40 – 14:50Nursing challenges of new therapiesRenester Fenton
14:50 – 15:00Q&A
15:00 – 15:15Break
15:15 – 16:45SESSION 2
Inherited Platelet Function Disorders
Nanda Uitslager
15:15 – 15:40Overview of platelet function disordersMalin Axelsson
15:40 – 16:00Glanzmann’s 360 studyKate Khair
16:00 – 16:10Q&A
16:10 – 16:35SLAM
16:35 – 16:45Q&A
16:45 – 17:15Break
17:15 – 18:45SESSION 3
The evolving role of the European Nurse working in bleeding disorders
Mary Kavanagh
17:15 – 17:35The future of the nursing professionRepresentative of International Council of Nurses
17:35 – 17:45Standards of Bleeding disorder Care for the futureGreta Mulders
17:45 – 18:45Haemophilia Nurses Perception of our Role Workshop
– Introduction
– Groupwork
EAHAD Nurses Committee
18:45 – 18:55Prize poster abstract presentation
Closing and evaluation
Mary Kavanagh
Nanda Uitslager
19:00 – 21:00Networking reception
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14:00 – 15:00SESSION 1
Important clinical topics
Marie Katzerova
14:00 – 14:20Patient or carer education/therapeutic educationNathalie Grinda
14:20 – 14:40Monitoring the recovery of joint bleedsFloor van Leeuwen
14:40 – 15:00Pain assessment in the current clinical set upsSarah Whitaker
15:00 – 15:30Break
15:30 – 17:00SESSION 2
Experience and change
David Stephensen
15:30 – 15:50Quality of Life and response to physical activity Clinician’s perspective – adultsOlav Versloot
15:50 – 16:10Quality of Life and response to physical activity Clinician’s perspective – childrenPaula Loughnane
16:10 – 16:30Quality of Life and response to physical activity Patient/parent’s perspectiveTBA
16:30 – 17:00Q&A/facilitated discussion with audience
17:00 – 17:30 Break
17:30 – 19:00SESSION 3
SLAM (Six 10-MIN PRESENTATIONS)
Ruth Elise Dybvik Matlary
17:30 – 18:30 Six 10-min presentations
18:30 – 18:5020-min Q&A
18:50 – 19:00Scoring of the SLAM presentations by the audience
19:00 – 21:00 Networking reception

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14:00 – 15:00SESSION 1
We care for Women! Psychological consequences for carriers and Women with Bleeding Disorders
Lotte Haverman
14:00 – 14:20A personal journey; from girl to womanManon Degenaar
14:20 – 14:40Girls transitioning to adulthood: do they get the necessary support?Gloria Rooney
14:40 – 15:00Case studyPetra Buckova
15:00 – 15:30Break
15:30 – 17:00SESSION 1 (cont.)
We care for Women! Psychological consequences for carriers and Women with Bleeding Disorders
Lotte Haverman
15:30 – 16:00Qualitative studies on carriers, bleeding disorders, and sexualityTessa van Gastel
16:00 – 16:30Effect of Gene Therapy on carrier womenAna Torres Ortuño
16:30 – 17:00Experience of running Peer GroupsChristina Burgess
17:00 – 17:30 Break
17:30 – 19:00SESSION 2
Support Groups
Gaby Golan
17:30 – 19:00 Workshop session on Support Groups
19:00 – 21:00 Networking reception