Allied Health Professionals Day
Nurses stream preliminary programme
| 12:00 – 13:00 | Registration and lunch | |
| 13:00 – 15:00 | Joint Session This joint multidisciplinary session will address three intergenerational topics, each explored from the perspectives of nursing, physiotherapy, and psychosocial care. For each presentation, all three committee representatives will contribute | |
| Family consultations | Grainne O’Brien & Gloria Rooney | |
| 13:00-13:05 | Opening message | Niamh O’Connell |
| 13:05-13:15 | Introduction and setting the scene | Christina Burgess & Gloria Rooney |
| 13:15-13:45 | Intergenerational guilt: grandfather with severe haemophilia | Grainne O’Brien & Gloria Rooney Malin Axelsson & Celine Chenuel Anne Juanos |
| 13:45-14:15 | Navigating complex family dynamics and treatment choices: mother of a child with severe haemophilia | Grainne O’Brien & Gloria Rooney Malin Axelsson & Celine Chenuel Anne Juanos |
| 14:15-14:45 | Supporting young people with haemophilia in leading active lives, balancing education without instilling fear: teenage boy with severe haemophilia | Grainne O’Brien & Gloria Rooney Malin Axelsson & Celine Chenuel Anne Juanos |
| 14:45-15:00 | Discussion and wrap-up | |
| 15:00 – 15:30 | Break | |
| 15:30 – 16:10 | Nurses SESSION 1 | ||
| SLAM | Linda Myrin Westesson Renester Fenton | ||
| 15.30-15.35 | Welcome | Maj Friberg Birkedal | |
| 15.35-15.41 | How to improve adherence to visits, protocols, and procedures required in clinical trials? Literature review applied to haemophilia | Sara Garcia Barcenilla | |
| 15.41-15.47 | Implementation of a nursing-led remote evaluation for the assessment and prioritization of adolescents with heavy menstrual bleeding | Cristina Benedicto Moreno | |
| 15.47-15.53 | Impact of new haemophilia therapies on therapeutic patient education: a survey of French nurses | Céline Chenuel | |
| 15.53-15.59 | A nurse-led multidisciplinary approach to post-infusion gene therapy management | Deirdre Gorman | |
| 16.00-16.10 | Q & A | ||
| 16:10-17:20 | Nurses SESSION 2 | ||
| Distress | Mary Kavanagh Maj Friberg Birkedal | ||
| 16:10-16:40 | Procedure-related anxiety in children | Piet Leroy | |
| 16:40-17:05 | Adults and distress | Grainne O’Brien | |
| 17:05-17:20 | Q&A | ||
| 17:20-17:50 | Break | ||
| 17:50-19:00 | Nurses SESSION 3 | ||
| MASTERCLASS: MUCOSAL BLEEDS | Nanda Uitslager Karin Van Galen | ||
| 17:50-18:35 | Mucosal bleeds | Nanda Uitslager Karin Van Galen | |
| 18:35-18:45 | Q&A | ||
| 18.45-19.00 | Star nurse & SLAM winner and closing remarks | Maj Friberg Birkedal | |
| 19:00 – 21:00 | Networking reception | ||
Physiotherapy stream preliminary programme
| 12:00 – 13:00 | Registration and lunch | |
| 13:00 – 15:00 | Joint Session | |
| Family consultations | Grainne O’Brien & Gloria Rooney | |
| 13:00-13:05 | Opening message | Niamh O’Connell |
| 13:05-13:15 | Introduction and setting the scene | Christina Burgess & Gloria Rooney |
| 13:15-13:45 | Intergenerational guilt: grandfather with severe haemophilia | Grainne O’Brien & Gloria Rooney Malin Axelsson & Celine Chenuel Anne Juanos |
| 13:45-14:15 | Navigating complex family dynamics and treatment choices: mother of a child with severe haemophilia | Grainne O’Brien & Gloria Rooney Malin Axelsson & Celine Chenuel Anne Juanos |
| 14:15-14:45 | Supporting young people with haemophilia in leading active lives, balancing education without instilling fear: teenage boy with severe haemophilia | Grainne O’Brien & Gloria Rooney Malin Axelsson & Celine Chenuel Anne Juanos |
| 14:45-15:00 | Discussion and wrap-up | |
| 15:00 – 15:30 | Break | |
| 15:30 – 16:10 | PHYSIOTHERAPISTS SESSION 1 | |
| SLAM | Ruth Elise Dybvik Matlary | |
| 15.30-15.35 | Welcome | Ruth Elise Dybvik Matlary |
| 15.35-15.41 | Reference values for the haemophilia joint health score in patients with severe haemophilia derived from the Canadian bleeding disorder registry | Khang Nguyen |
| 15.41-15.47 | Patterns of habitual physical activity among Irish children and adolescents with haemophilia | Paula Loughnane |
| 15.47-15.53 | Long-term survival of total hip and total knee arthroplasty in people with haemophilia | Gijs Aertssen |
| 15.53-15.59 | Revisiting blood-induced joint damage in Glanzmann’s Thrombasthenia: Evidence from a Retrospective Case Review of three patients | Thuvia Flannery |
| 16.00-16.10 | Q&A | |
| 16:10-17:20 | PHYSIOTHERAPISTS SESSION 2 | |
| Joint health: prehabilitation, intervention, recovery | Merel Timmer | |
| 16:10-16:30 | Optimising outcomes: The role of prehabilitation in haemophilia | Kapo Demin-Yu |
| 16:30-16:50 | Radiosynovectomy – plan/pathway | Paul McLaughlin |
| 16:50-17:20 | Orthopaedic surgery – elbow rehab | Philip Ahrens |
| 17:20-17:50 | Break | |
| 17:50-19:00 | PHYSIOTHERAPISTS SESSION 3 | |
| Debate: All people with bleeding disorders should have an annual musculoskeletal review | Magnus Aspdahl | |
| 17:50-18:00 | Setting the scene | Merel Timmer |
| 18:00-18:50 | Debate | Lize van Vulpen (in favour) Sébastien Lobet (against) |
| 18:50-19:00 | Q&A and closing remarks | |
| 19:00 – 21:00 | Networking reception and PT SLAM Winner | |
Psychosocial professionals stream preliminary programme
| 12:00 – 13:00 | Registration and lunch | |
| 13:00 – 15:00 | Joint Session | |
| Family consultations | Grainne O’Brien & Gloria Rooney | |
| 13:00-13:05 | Opening message | Niamh O’Connell |
| 13:05-13:15 | Introduction and setting the scene | Christina Burgess & Gloria Rooney |
| 13:15-13:45 | Intergenerational guilt: grandfather with severe haemophilia | Grainne O’Brien & Gloria Rooney Malin Axelsson & Celine Chenuel Anne Juanos |
| 13:45-14:15 | Navigating complex family dynamics and treatment choices: mother of a child with severe haemophilia | Grainne O’Brien & Gloria Rooney Malin Axelsson & Celine Chenuel Anne Juanos |
| 14:15-14:45 | Supporting young people with haemophilia in leading active lives, balancing education without instilling fear: teenage boy with severe haemophilia | Grainne O’Brien & Gloria Rooney Malin Axelsson & Celine Chenuel Anne Juanos |
| 14:45-15:00 | Discussion and wrap-up | |
| 15:00 – 15:30 | Break | |
| 15:20 – 16:05 | Psychosocial Professionals SESSION 1 | |
| EMERGING MENTAL AND SOCIAL HEALTH ISSUES | Grainne O’Brien | |
| 15:20-15:45 | Checklist from a social worker perspective | Karolien Bartels Gloria Rooney |
| 15:45-16:05 | Relationships and sexual functioning | Tessa van Gastel |
| 16:10-17:20 | Nurses – Psychosocial Professionals SESSION 2 | |
| Distress | Mary Kavanagh Maj Friberg Birkedal | |
| 16:10-16:40 | Procedure related anxiety in children | Piet Leroy |
| 16:40-17:05 | Adults and distress | Grainne O’Brien |
| 17:05-17:20 | Q&A | |
| 17:20-17:50 | Break | |
| 17:50-19:00 | Psychosocial Professionals SESSION 3 | |
| Psychosocial care at important transition points | Gloria Rooney | |
| 17:50-18:10 | Trauma-sensitive care for a new diagnosis | Gaby Golan |
| 18:10-18:30 | EAHAD European psychosocial principles for gene therapy | Christina Burgess |
| 18:30-18:50 | The use of EMDR in treating anxiety and adjustment disorders in patients with haemophilia – A case study of a child and his mother | Petra Buckova |
| 18:50-19:00 | Discussion and Wrap-up | |
| 19:00 – 21:00 | Networking reception | |
| 08.30 – 09.00 | WELCOME AND INTRODUCTION | Niamh O’ Connell |
| 09.00 – 10.30 | Multidisciplinary educational session: a multidisciplinary approach to successful ageing in haemophilia | Jan Blatny Brian O’ Mahony |
| 09:00 – 09:10 | AHP Day recap | Christina Burgess Maj Friberg Birkedal Ruth Elise Dybvik Matlary |
| 09:10 – 09:30 | Evidence-based strategies for successful ageing | Rose Anne Kenny |
| 09:30 – 10:30 | Panel discussion | Jan Blatny Brian O’Mahony Rose Anne Kenny Cathy Harrison Mark McGowan Claire Forde Alison Dougall Gary Benson |
| 10.30 – 11.00 | Coffee break/Poster viewing | |
| 11.00 – 12.00 | Oral communications: investigator-led clinical and scientific research | Ana Boban Roger Preston |
| 11:00 – 11:10 | Clinical characteristics of Glanzmann thrombasthenia – First results from the Glanzmann thrombasthenia natural history study | Roger Schutgens |
| 11:10 – 11:20 | MRI-based assessment of joint outcomes in children with severe haemophilia A on emicizumab prophylaxis: A prospective observational study | Laila Sherief |
| 11:20 – 11:30 | Reference values for the haemophilia joint health score in patients with severe haemophilia derived from the canadian bleeding disorder registry | Khang Nguyen |
| 11:30 – 11:40 | A novel genetic classification of inhibitor risk for F8 nonsense mutations based on immunogenic profiling of ribosomal readthrough in EAHAD database | Maria Francesca Testa |
| 11:40 – 11:50 | Long-term results of patients with acquired haemophilia A in the era of emicizumab | Margot Erard |
| 11:50 – 12:00 | Update on inhibitor development for individual FVIII concentrates in PUPs with severe haemophilia A in the PedNet registry | Martin Olivieri |
| 12.00 – 13.00 | Lunch break/Poster viewing | |
| 13.00 – 18.30 | Satellite symposia | |
| 13.00-14.00 | Satellite Symposium 1 | |
| Satellite Symposium 2 | ||
| Satellite Symposium 3 | ||
| 14.00 – 14.30 | Coffee break/Poster viewing | |
| 14.30 – 15.30 | Satellite Symposium 4 | |
| Satellite Symposium 5 | ||
| Satellite Symposium 6 | ||
| 15.30 – 16.00 | Coffee break/Poster viewing | |
| 16.00 – 17.00 | Satellite Symposium 7 | |
| Satellite Symposium 8 | ||
| Satellite Symposium 9 | ||
| 17.00 – 17.30 | Coffee break/Poster viewing | |
| 17.30 – 18.30 | Satellite Symposium 10 | |
| Satellite Symposium 11 | ||
| Satellite Symposium 12 | ||
| 18:30 – 19:30 | Welcome reception and poster presentations | |
| 09.00 – 10.00 | SESSION 1: re-imagining FACTOR replacement for haemophilia | Jan Blatny Mairead O’Donovan |
| 09.00 – 09.20 | Factor VIII replacement in the era of expanding choices | Jan Astermark |
| 09.20 – 09.40 | Factor IX replacement – appraising the options | Cedric Hermans |
| 09.40 – 10.00 | Monitoring factor treatment in 2026 and beyond | Annette Bowyer |
| 10.00 – 10.30 | Coffee break/Poster viewing | |
| 10.30 – 12.00 | SESSION 2: WOMEN AND GIRLS+ WITH BLEEDING DISORDERS | Samantha Gouw Michelle Lavin |
| 10.30 – 10.46 | Adapting our haemophilia nursing roles to meet the needs of WGBD | Petra Elvinge |
| 10.46 – 11.02 | Joint health in WGBD | Megan Kennedy |
| 11.02 – 11.18 | Pregnancy related challenges for women with Glanzmann Thrombasthenia | Roseline d’Oiron |
| 11.18 – 11.34 | Optimal peri-delivery von Willebrand Factor targets | Karin van Galen |
| 11.34 – 11.50 | Gender diversity in haemostasis care: bridging gaps in an evolving landscape | Nathan Connell |
| 11.50 – 12.00 | Closing thoughts | |
| 12.00 – 13.00 | Lunch break/Poster viewing/EAHAD Annual General Meeting | |
| 13.00 – 14.00 | Session 3: EAHAD – ISTH joint session | Jan Blatny Pantep Angchaisuksiri |
| 13.00 – 13.30 | Bleeding disorders of unknown cause – challenges in diagnosis and management | Floor Heubel-Moenen |
| 13.30 – 14.00 | From data to diagnosis: the role of digital health in bleeding disorders of unknown cause | Guido Giunti |
| 14.00 – 14.30 | Coffee break/Poster viewing | |
| 14.30 – 16.00 | SESSION 4: modifiers of bleeding phenotype in ALLIED Bleeding Disorders | Maria Teresa Alvarez Roman Kevin Ryan |
| 14.30 – 15.00 | Insights from genetic and multiomic profiling in platelet disorders | Jorge Di Paola |
| 15.00 – 15.30 | Molecular mechanisms of angiodysplasia | Anna Randi |
| 15.30 – 16.00 | Bleeding phenotype in rare bleeding disorders | Saskia Schols |
| 16.00 – 16.15 | Coffee break/Poster viewing | |
| 16.15 – 17.35 | SESSION 5 EAHAD ACTIVITIES | Jan Blatny Niamh O’Connell |
| 16.15 – 16.25 | EUHASS | Samantha Gouw |
| 16.25 – 16.40 | Coagulation factor variant databases | Keith Gomez |
| 16.40 – 17.00 | European principles of nursing care for persons with inherited bleeding disorders | Nanda Uitslager |
| 17.00 – 17.15 | Joint health | Roberta Gualtierotti |
| 17.15 – 17.35 | Accreditation and audit of haemophilia centres: results from the pilot project | Ana Boban & Fariba Baghaei |
| 17.35 – 17.55 | SESSION 6 EAHAD AWARDS | Jan Blatny Niamh O’Connell |
| 17.35 – 17.45 | EAHAD Lifetime achievement award 2026: Erik Berntorp | |
| 17.45 – 17.55 | EAHAD Lifetime achievement award 2026: Kathelijn Fischer | |
| 17.55 – 18.05 | Poster awards and 2025 research grants awards | |
| 20.00 – 00.00 | Networking evening | |
| 08.30 – 10.00 | SESSION 7: SLAM | Pratima Chowdary Ruth Gilmore |
| 08:30 – 08:39 | High prevalence of bleeding disorder of unknown cause in women: findings from the Maastricht bleeding cohort | Nienke Meskes |
| 08:39 – 08:48 | Joint health in participants with haemophilia A or B with inhibitors treated with Marstacimab in the phase 3 BASIS trial | Johnny Mahlangu |
| 08:48 – 08:57 | VGA039, a protein S-targeting monoclonal antibody, restores haemostasis in von Willebrand disease patient blood in an ex vivo bleeding model | Yumiko Sakurai |
| 08:57 – 09:06 | WFH, EAHAD, and EHC: Best practice recommendations for implementing shared decision making in haemophilia | Donna Coffin |
| 09:06 – 09:15 | Durable bleed protection for all bleeding subtypes and favorable safety over 5 years (end-of-study) in the Phase 3 HOPE-B trial for persons with severe or moderately severe Haemophilia B | Frank Leebeek |
| 09:15 – 09:24 | Stable factor IX expression and sustained reductions in factor IX use 9 years after gene therapy with CSL220 in adults with haemophilia B | Wolfgang Miesbach |
| 09:24 – 09:33 | Subcutaneous four-week dosing of the novel protein s antibody VGA039 demonstrates safety and clinically meaningful bleed reduction in patients with von Willebrand disease: phase 1/2 multi-dose study results | Gabriela Yamaguti-Hayakawa |
| 09:33 – 09:42 | Recombinant von Willebrand factor prophylaxis for severe von Willebrand disease: final results focusing on adults receiving once weekly prophylaxis in a phase 3b continuation study | Sophie Susen |
| 09:42 – 09:51 | New Fitusiran 10 mg dose increases proportion of people with haemophilia within target Antithrombin range of 15–35% | Guy Young |
| 09:51 – 10:00 | Characterization of ALT elevations during the 5-year GENEr8-1 trial of Valoctocogene Roxaparvovec gene transfer for severe haemophilia A | Robert Klamroth |
| 10.00 – 10.30 | Coffee break/Poster viewing | |
| 10.30 – 11.30 | Session 8: Gene Therapy | Wolfgang Miesbach Cleona Duggan |
| 10.30 – 11.00 | Current and future gene therapy approaches for bleeding disorders | Alessio Cantore |
| 11.00 – 11.30 | Capturing outcomes and managing gene therapy | Thierry VandenDriessche |
| 11.30 – 12.00 | Arosenius Lecture 2026 | Fariba Baghaei |
| 11.30 – 12.00 | Von Willebrand Disease centennial anniversary: 100 years of progress | James O’Donnell |
| 12.00 – 12.45 | Lunch break | |
| 12.45 – 14.15 | Session 9: Non-Factor treatment for haemophilia and beyond | Robert Klamroth Beatrice Nolan |
| 12.45 – 13.15 | Considerations for managing children on NFTs | Chris Koenigs |
| 13.15 – 13.45 | Nurse-led management of young adults on NFTs | Marie Eales |
| 13.45 – 14.15 | NFTs in the future – challenges, unknowns and opportunities | Maria Elisa Mancuso |
| 14.15 – 14.30 | Break | |
| 14.30 – 15.30 | SESSION 10: LATE BREAKING SESSION | Jan Blatny Niamh O’Connell |
| 14.30 – 14.45 | Efanesoctocog Alfa Prophylaxis for People with Severe Haemophilia A: Third Interim Results from the XTEND-ed Long-Term Extension Study | Pratima Chowdary |
| 14.45 – 15.00 | Mim8 prophylaxis in children with haemophilia A: 52-week efficacy and safety outcomes from FRONTIER3 | Johnny Mahlangu |
| 15.00 – 15.15 | Safety, pharmacodynamics, and efficacy of NXT007 after switching from Emicizumab in haemophilia A with and without inhibitors (NXTAGE Part C) | Keiji Nogami |
| 15.15 – 15.30 | Marstacimab reduces bleeding, bypassing agent use, and target joints in haemophilia A or B with inhibitors: Results from the phase 3 BASIS trial | Johnny Mahlangu |
| 15.30 – 15.45 | Closing remarks and save the date for EAHAD 2027 | Niamh O’Connell |