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Scientific programme

Allied Health Professionals Day

Nurses Stream Preliminary Programme
12:00 – 13:00 Registration and lunch
13:00 – 15:00

Joint Session

This joint multidisciplinary session will address three intergenerational topics, each explored from the perspectives of nursing, physiotherapy, and psychosocial care. For each presentation, all three committee representatives will contribute

Family consultationsGloria Rooney
Grainne o’brien
13:00-13:05Opening messageNiamh O’Connell
13:05-13:15Introduction and setting the sceneChristina Burgess & Gloria Rooney
13:05-13:15Intergenerational guilt: grandfather with severe haemophiliaGrainne O’Brien & Gloria Rooney
Mary Kavanagh
Anne Juanos
13:45-14:15Navigating complex family dynamics and treatment choices: mother of a child with severe haemophiliaGrainne O’Brien & Gloria Rooney
Mary Kavanagh
Anne Juanos
14:15-14:45Supporting young people with haemophilia in leading active lives, balancing education and empowerment without instilling fear: young boy with severe haemophiliaGrainne O’Brien & Gloria Rooney
Mary Kavanagh
Anne Juanos
14:45-15:00Discussion and wrap-up
15:00 – 15:30Break
15:30 – 16:10Nurses SESSION 1
SLAM Linda Myrin Westesson
Malin Axelsson
15.30-15.35WelcomeMaj Friberg Birkedal
15.35-15.41SLAM 1 
15.41-15.47SLAM 2 
15.47-15.53SLAM 3 
15.53-15.59SLAM 4 
16.00-16.10Q & A 
16:10-17:20Nurses SESSION 2
DistressMary Kavanagh
Maj Friberg Birkedal
16:10-16:40Procedure-related anxiety in children 
16:40-17:05Adults and distressGrainne O’Brien
17:05-17:20Q&A 
17:20-17:50Break
17:50-19:00Nurses SESSION 3
MASTERCLASS: MUCOSAL BLEEDSNanda Uitslager
Karin Van Galen
17:50-18:35Mucosal BleedsNanda Uitslager
Karin Van Galen
18:35-18:45Q&A 
18.45-19.00Star nurse & SLAM winner and closing remarksMaj Friberg Birkedal
19:00 – 21:00Networking reception
*With short speeches by the EAHAD AHP Committees
12:00 – 13:00 Registration and lunch
13:00 – 15:00Joint Session
Family consultationsGloria Rooney
Grainne o’brien
13:00-13:05Opening messageNiamh O’Connell
13:05-13:15Introduction and setting the sceneChristina Burgess & Gloria Rooney
13:15-13:45Intergenerational guilt: grandfather with severe haemophiliaPsyso Committtee: Grainne O’Brien and Gloria Rooney
13:45-14:15Navigating complex family dynamics and treatment choices: mother of a child with severe haemophiliaNurses Committee: Mary Kavanagh
14:15-14:45Supporting young people with haemophilia in leading active lives, balancing education and empowerment without instilling fear: young boy with severe haemophiliaPT Committee: Anne Juanos
14:45-15:00Discussion and wrap-up
15:00 – 15:30Break
15:30 – 16:10PHYSIOTHERAPISTS SESSION 1
SLAMRuth Elise Dybvik Matlary
15.30-15.35WelcomeRuth Elise Dybvik Matlary
15.35-15.41SLAM 1 
15.41-15.47SLAM 2 
15.47-15.53SLAM 3 
15.53-15.59SLAM 4 
16.00-16.10Q&A 
16:10-17:20PHYSIOTHERAPISTS SESSION 2
Joint health: prehabilitation, intervention, recoveryMerel Timmer
16:10-16:30Prehabilitation/preparation for interventionKapo Demin
16:30-16:50Radiosynovectomy – plan/pathwayPaul McLaughlin
16:50-17:20Orthopaedic surgery – elbow rehabPhilip Arens
17:20-17:50Break
17:50-19:00PHYSIOTHERAPISTS SESSION 3
Debate: All People with Bleeding Disorders should have an Annual Musculoskeletal ReviewMagnus Asphdal
17:50-18:00Setting the SceneMerel Timmer
18:00-18:50DebateLize van Vulpen (in favour)
Sébastien Lobet (against)
18:50-19:00Q&A and Closing Remarks 
19:00 – 21:00Networking reception and PT SLAM Winner
*With short speeches by the EAHAD AHP Committees
12:00 – 13:00 Registration and lunch
13:00 – 15:00Joint Session
Family consultationsGloria Rooney
Grainne o’brien
13:00-13:05Opening messageNiamh O’Connell
13:05-13:15Introduction and setting the sceneChristina Burgess & Gloria Rooney
13:15-13:45Intergenerational guilt: grandfather with severe haemophiliaPsyso Committtee: Grainne O’Brien and Gloria Rooney
13:45-14:15Navigating complex family dynamics and treatment choices: mother of a child with severe haemophiliaNurses Committee: Mary Kavanagh
14:15-14:45Supporting young people with haemophilia in leading active lives, balancing education and empowerment without instilling fear: young boy with severe haemophiliaPT Committee: Anne Juanos
14:45-15:00Discussion and wrap-up
15:00 – 15:30Break
15:20 – 16:05Psychosocial Professionals SESSION 1
Emerging mental health issuesLotte Haverman
15:20-15:50Neurodiversity 
15:50-16:05Relationships and Sexual FunctioningTessa van Gastel
16:10-17:20Nurses – Psychosocial Professionals SESSION 2
DistressMary Kavanagh
Maj Friberg Birkedal
16:10-16:40Procedure related anxiety in children 
16:40-17:05Adults and distressGrainne O’Brien
17:05-17:20Q&A 
17:20-17:50Break
17:50-19:00Psychosocial Professionals SESSION 3
Psychosocial care at important transition pointsGloria Rooney
17:50-18:10Trauma-sensitive care for a new diagnosisGaby Golan
18:10-18:30EAHAD European Psychosocial Principles for Gene TherapyLotte Haverman
18:30-18:50EMDRPetra Buckova
18:50-19:00Discussion and Wrap-up
19:00 – 21:00Networking reception
*With short speeches by the EAHAD AHP Committees
08.30 – 09.00WELCOME AND INTRODUCTION Niamh O’ Connell
09.00 – 10.30Multidisciplinary Educational Session: A Multidisciplinary Approach to successful Ageing in haemophiliaJan Blatny
09:00 – 09:10AHP Day Recap

Christina Burgess 

Maj Friberg Birkedal

Ruth Elise Dybvik Matlary

09:10 – 09:20Evidence-based strategies for successful ageing 
09:20 – 10:30Panel discussionJan Blatny
Brian O’Mahony
Cathy Harrison
Mark McGowan
Claire Forde
10.30 – 11.00Coffee Break/Poster Viewing
11.00 – 12.00oral communications: investigator-led clinical and scientific research Ana Boban
Roger Preston
 6x 10-minute presentations 
12.00 – 13.00Lunch Break/Poster Viewing
13.00 – 18.30 Satellite symposia
13.00-14.00 Satellite Symposium 1
Satellite Symposium 2
Satellite Symposium 3
14.00 – 14.30 Coffee Break/Poster Viewing
14.30 – 15.30 Satellite Symposium 4
Satellite Symposium 5
Satellite Symposium 6
15.30 – 16.00 Coffee Break/Poster Viewing
16.00 – 17.00 Satellite Symposium 7
Satellite Symposium 8
Satellite Symposium 9
17.00 – 17.30 Coffee Break/Poster Viewing
17.30 – 18.30 Satellite Symposium 10
Satellite Symposium 11
Satellite Symposium 12
18:30 – 19:30 Welcome Reception and Poster Presentations
09.00 – 10.00SESSION 1: re-imagining FACTOR replacement for haemophiliaJan Blatny
Mairead O’Donovan
09.00 – 09.20Factor VIII replacement in the era of expanding choices 
09.20 – 09.40Factor IX replacement – appraising the optionsCedric Hermans
09.40 – 10.00Monitoring factor treatment in 2026 and beyond 
10.00 – 10.30Coffee Break/Poster Viewing
10.30 – 12.00SESSION 2: WOMEN AND GIRLS+ WITH BLEEDING DISORDERSSamantha Gouw
Michelle Lavin
10.30 – 10.46Adapting our haemophilia nursing roles to meet the needs of WGBDPetra Elvinge
10.46 – 11.02Joint health in WGBDMegan Kennedy
11.02 – 11.18Pregnancy related challenges for women with Glanzmann Thrombasthenia – an EAHAD joint project 
11.18 – 11.34Optimal peri-delivery von Willebrand Factor targetsKarin van Galen
11.34 – 11.50Gender Diversity in Haemostasis Care: Bridging Gaps in an Evolving LandscapeNathan Connell
11.50 – 12.00Closing thoughts 
12.00 – 13.00Lunch Break/Poster Viewing/EAHAD Annual General Meeting
13.00 – 14.00Session 3: EAHAD – ISTH joint sessionJan Blatny
Pantep Angchaisuksiri
13.00 – 13.30Bleeding disorders of unknown cause – challenges in diagnosis and management 
13.30 – 14.00The Age of Diagnosis – the interface of normal and pathological symptoms 
14.00 – 14.30Coffee Break/Poster Viewing
14.30 – 16.00SESSION 4: modifiers of bleeding phenotype in ALLIED Bleeding DisordersMaria Teresa Alvarez Roman
14.30 – 15.00Insights from genetic and multiomic profiling in platelet disordersJorge Di Paola
15.00 – 15.30Molecular mechanisms of angiodysplasiaAnna Randi
15.30 – 16.00Bleeding phenotype in rare bleeding disordersSaskia Schols
16.00 – 16.15Coffee Break/Poster Viewing
16.15 – 17.35SESSION 5
EAHAD ACTIVITIES		Jan Blatny
Niamh O’Connell
16.15 – 16.25EUHASSSamantha Gouw
16.25 – 16.40Coagulation Factor Variant DatabasesKeith Gomez
16.40 – 17.00European Principles of Nursing Care for Persons with Inherited Bleeding DisordersNanda Uitslager
17.00 – 17.15Joint HealthRoberta Gualtierotti
17.15 – 17.35Accreditation and Audit of haemophilia centres: results from the pilot projectAna Boban & Fariba Baghaei
17.35 – 17.55SESSION 6
EAHAD AWARDS		Jan Blatny
Niamh O’Connell
17.35 – 17.45EAHAD Lifetime Achievement Award 2026: Erik Berntorp
17.45 – 17.55EAHAD Lifetime Achievement Award 2026: Kathelijn Fischer
17.55 – 18.05Poster Awards and 2025 Research Grants Awards
20.00 – 00.00 Networking Evening
08.30 – 10.00 SESSION 7: SLAM Pratima Chowdary
10 abstracts selected for oral presentation
10.00 – 10.30 Coffee Break/Poster Viewing
10.30 – 11.30 Session 8: Gene Therapy Wolfgang Miesbach
10.30 – 11.00 The future of gene therapy approaches for bleeding disorders
11.00 – 11.30 Capturing outcomes and managing complications after gene therapy
11.30 – 12.00 Arosenius Lecture 2026 Fariba Baghaei
Von Willebrand Disease centennial anniversary: 100 years of progress
12.00 – 12.45 Lunch Break
12.45 – 14.15Session 9: Non-Factor treatment for haemophilia and beyondRobert Klamroth
12.45 – 13.15Considerations for managing children on NFTs 
13.15 – 13.45Nurse-led management of young adults on NFTs 
13.45 – 14.15NFTs in the future – challenges, unknowns and opportunitiesMaria Elisa Mancuso
14.15 – 14.30Break
14.30 – 15.30SESSION 10: LATEST BREAKING SESSIONJan Blatny
Niamh O’Connell
 To be announced in January 2026
15.30 – 15.45 Closing remarks and save the date for EAHAD 2027 Niamh O’Connell

Contact MCI Group – eahad@mci-agency.com

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© 19th Annual Congress of the European
Association for Haemophilia and Allied Disorders 2026
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