Allied Health Professionals Day
Nurses Stream Preliminary Programme
| 12:00 – 13:00 | REGISTRATION AND LUNCH |
| 13:00 – 15:00 | JOINT SESSION BLEEDING DISORDERS THROUGH LIFE | Paul McLaughlin |
| 13:00-13:10 | Opening message | Flora Peyvandi |
| 13:10-13:15 | Introduction | Paul Mclaughlin |
| 13:15-13:45 | Case study: a young patient with severe FIX deficiency and comorbidities | Mary Kavanagh |
| 13:45-14:15 | Case study presentation on menopause | Christina Burgess |
| 14:15-14:45 | Case study presentation on care home | Anne Juanos |
| 14:45-15:00 | Discussion and wrap-up | |
| 15:00 – 15:30 | Break | |
| 15:30 – 16:10 | NURSES SESSION 1 SLAM | Renester Fenton |
| 15.30-15.35 | Welcome | Nanda Uitslager |
| 15.35-15.41 | SLAM 1 | |
| 15.41-15.47 | SLAM 2 | |
| 15.47-15.53 | SLAM 3 | |
| 15.53-15.59 | SLAM 4 | |
| 16.00-16.10 | Q&A |
| 16.10 – 17.00 | NURSES SESSION 2 MASTERCLASS: GENETICS | Malin Axelsson |
| 16.10-16.30 | Explaining genetics C counselling | Nadine Andersson Gretenkort |
| 16.30-16.50 | Making a family tree | |
| 16.50-17.00 | Report back | |
| 17.00-17.35 | Break | |
| 17.30 – 18.45 | NURSES SESSION 3 HOW DO YOU MANAGE RARE BLEEDING DISORDERS | Linda Myrin Westesson |
| 17:30-17:40 | Case study on Afibrinogenemia | Nina Jurander |
| 17:40-17:50 | Case study on Severe Factor X Deficiency | Corinne Liem |
| 17:50-18:00 | Case study on Severe Factor V Deficiency | Niamh Larkin |
| 18:00-18:20 | Glanzmann: the 360 study | Kate Khair |
| 18:20-18:45 | Q&A | |
| 18.45 – 18.50 | WRAP UP AND CLOSING REMARKS | Nanda Uitslager |
| 18.50 – 19.00 | BEST SLAM PRESENTATION AND STAR EUROPEAN NURSE AWARD | Maj Friberg Birkedal |
| 19:00 – 21:00 | Networking reception *With short speeches by the EAHAD AHP Committees recapping the day | |
Physiotherapists Stream Preliminary Programme
| 12:00 – 13:00 | REGISTRATION AND LUNCH |
| 13:00 – 15:00 | JOINT SESSION BLEEDING DISORDERS THROUGH LIFE | Paul McLaughlin |
| 13:00-13:10 | Opening message | Flora Peyvandi |
| 13:10-13:15 | Introduction | Paul Mclaughlin |
| 13:15-13:45 | Case study: a young patient with severe FIX deficiency and comorbidities | Mary Kavanagh |
| 13:45-14:15 | Case study presentation on menopause | Christina Burgess |
| 14:15-14:45 | Case study presentation on care home | Anne Juanos |
| 14:45-15:00 | Discussion and wrap-up | |
| 15:00 – 15:30 | Break | |
| 15:30 – 16:10 | PHYSIOTHERAPISTS SESSION 1 SLAM | Paula Loughnane Magnus Aspdahl |
| 15.30-15.35 | Welcome | |
| 15.35-15.41 | SLAM 1 | |
| 15.41-15.47 | SLAM 2 | |
| 15.47-15.53 | SLAM 3 | |
| 15.53-15.59 | SLAM 4 | |
| 16.00-16.10 | Q&A | |
| 16.10 – 17.00 | PHYSIOTHERAPISTS SESSION 2 DEBATE: AGEING IN HAEMOPHILIA: IS JOINT SCREENING FUTILE? | Paul McLaughlin Merel Timmer |
| 16.10-16.20 | Ageing in haemophilia: State of the art | William McKeown |
| 16.20-16.50 | Joint screening is futile | Sofia Pérez-Alenda (in favour)/ Victor Jimenez-Yuste (against) |
| 16.50-17.00 | Q&A | |
| 17.00-17.35 | Break | |
| 17.30 – 18.45 | PHYSIOTHERAPISTS SESSION 3 CONSIDERING COMORBIDITIES IN PEOPLE WITH BLEEDING DISORDERS | Marie Katzerova Nathalie Grinda | ||
| 17:30-17:48 | Cardiometabolic issues | Megan Kennedy | ||
| 17:48-18:06 | Bone health issues | Laurent Frenzel | ||
| 18:06-18:24 | Setting up a haemophilia-specific pain management service | Aine O’Gara | ||
| 18:24-18:42 | Orthopaedic surgery in people with haemophilia | Luigi Piero Solimeno | ||
| 18.42 – 19.00 | WRAP-UP AND CLOSING REMARKS | |||
| 19:00-21:00 | Networking reception *With short speeches by the EAHAD AHP Committees recapping the day | |||
Psychosocial Professionals Preliminary Programme*
| 12:00 – 13:00 | REGISTRATION AND LUNCH |
| 13:00 – 15:00 | JOINT SESSION BLEEDING DISORDERS THROUGH LIFE | Paul McLaughlin |
| 13:00-13:10 | Opening message | Flora Peyvandi |
| 13:10-13:15 | Introduction | Paul Mclaughlin |
| 13:15-13:45 | Case study: a young patient with severe FIX deficiency and comorbidities | Mary Kavanagh |
| 13:45-14:15 | Case study presentation on menopause | Christina Burgess |
| 14:15-14:45 | Case study presentation on care home | Anne Juanos |
| 14:45-15:00 | Discussion and wrap-up | |
| 15:00 – 15:30 | Break | |
| 15:30 – 17:05 | PSYCHOSOCIAL PROFESSIONALS SESSION 1 WORKSHOP ON ETHICAL ISSUES | Christina Burgess Gaby Golan |
| 15:30-15:35 | Welcome | Christina Burgess |
| 15:35-15:50 | Introduction | Gaby Golan |
| 15:50-16:05 | Point of view of medical psychology | Alice van Dijk-Lokkart |
| 16:05-16:20 | Scenario 1: Novel Therapies and Gene Therapy | Ilaria Cutica Gaby Golan |
| 16:20-16:32 | Small group discussion | |
| 16:32-16:35 | Feedback | |
| 16:35-16:50 | Scenario 2: Confidentiality | Christina Burgess Gaby Golan |
| 16:50-17:02 | Small group discussion | |
| 17:02-17:05 | Feedback | |
| 17:05-17.10 | Take away message | Christina Burgess Gaby Golan |
| 17.10-17.30 | Break | |
| 17.30 – 18.45 | PSYCHOSOCIAL PROFESSIONALS SESSION 2 TRAUMATIC EXPERIENCES IN HAEMOPHILIA | Lotte Haverman Karolien Bartels |
| 17:30-17:35 | Introduction | Karolien Bartels |
| 17:35-18:05 | Psychosocial barriers in haemophilia | Grainne O’Brien and Gloria Rooney |
| 18:05-18:25 | Trauma and pain memories in IBD | Anna Wells |
| 18:25-18:45 | Case study – EMDR Treatment | Alice van Dijk-Lokkart and Petra Buckova |
| 18.45 – 19.00 | CLOSING REMARKS AND FUTURE DIRECTION | |
| 19:00 – 21:00 | Networking reception *With short speeches by the EAHAD AHP Committees recapping the day | |
*The stream is dedicated to the memory of Ana Torres Ortuño, a beloved and dedicated member of the EAHAD Psychosocial Professionals Committee, who passed away in September 2024.
| 09.00 – 11.00 | MULTIDISCIPLINARY EDUCATIONAL SESSION Workshop on Ultrasound: Joint Health in Haemophilia – where are we going | Jan Blatny Roberta Gualtierotti |
| 09:00 – 09:10 | Allied Health Professionals Day Recap | Nanda Uitslager Ruth Elise Dybvik Matlary Christina Burgess |
| Panel discussion | Jan Blatny Roberta Gualtierotti Merel Timmer Carlo Martinoli Maj Friberg Birkedal Roberto Carioli | |
| 10.50 – 11.00 | Q&A and Closing Thoughts | |
| 11.00 – 11.30 | Coffee Break/Poster Viewing | |
| 11.30 – 18.30 | SATELLITE SYMPOSIA | |
| 11.30 – 12.45 | Satellite Symposium 1 | |
| Satellite Symposium 2 | ||
| Satellite Symposium 3 | ||
| 12.45 – 13.45 | Lunch Break | |
| 13.45 – 15.00 | Satellite Symposium 4 | |
| Satellite Symposium 5 | ||
| Satellite Symposium 6 | ||
| 15.00 – 15.30 | Coffee Break | |
| 15.30 – 16.45 | Satellite Symposium 4 | |
| Satellite Symposium 8 | ||
| Satellite Symposium 9 | ||
| 16.45 – 17.15 | Coffee Break | |
| 17.15 – 18.30 | Satellite Symposium 10 | |
| Satellite Symposium 11 | ||
| 18:30 – 19:30 | Welcome Reception and Poster Presentations | |
| 08.30 – 09.00 | WELCOME AND INTRODUCTION | Flora Peyvandi |
| 09.00 – 10.30 | SESSION 1 Modern era of diagnosis and treatment | Flora Peyvandi Jan Blatny |
| 09.00 – 09.30 | Coagulation revisited: novel concepts to know in hemostasis | Wolfram Ruf |
| 09.30 – 10.00 | The role of next generation sequencing in bleeding disorders | Rosanna Asselta |
| 10.00 – 10.30 | How AI can improve early diagnosis in bleeding disorders | Sergio Mascetti |
| 10.30 – 11.00 | Coffee Break/Poster Viewing | |
| 11.00 – 12.30 | SESSION 2 A century of von Willebrand Disease | Ana Boban Raimondo de Cristofaro |
| 11.00 – 11.30 | VWD diagnosis and optimal treatment | Carlo Castaman |
| 11.30 – 12.00 | Demographics and epidemiology of VWD using big data | Omid Seidizadeh |
| 12.00 – 12.30 | Novel therapies in VWD | Frank Leebeek |
| 12.30 – 13.30 | Lunch Break/Poster Viewing/EAHAD Annual General Meeting | |
| 13.30 – 14.30 | SESSION 3 Current and Rapid Developments Around Novel Therapies EAHAD-ISTH Joint Session | Jan Blatný (EAHAD) Pantep Angchaisuksiri (ISTH) |
| 13.30 – 14.00 | Opportunities and Challenges of Novel Therapies | Peter Lenting (ISTH) |
| 14.00 – 14.30 | Monitoring haemophilia treatment | Armando Tripodi (EAHAD) |
| 14.30 – 15.00 | Coffee Break/Poster Viewing | |
| 15.00 – 16.30 | SESSION 4 Gene Therapy | Wolfgang Miesbach Pratima Chowdary |
| 15.00 – 15.20 | Gene Therapy in haemophilia and emerging technologies | David Lillicrap |
| 15.20 – 15.40 | Experience of European centres treating patients with commercially available Gene Therapy | Robert Klamroth Flora Peyvandi |
| 15.40 – 15.55 | Coagulation Factor measurements during GT in haemophilia | Anne Riddell |
| 15.55 – 16.10 | The Role of the haemophilia treatment centre nurse in Gene Therapy | Greta Mulders |
| 16.10 – 16.30 | Discussion | |
| 16.30 – 16.45 | Coffee Break/Poster Viewing | |
| 16.45 – 17.25 | SESSION 5 EAHAD Research Grant Reports | Jan Blatny Robert Klamroth | |
| 16.45 – 16.55 | Neutrophils wandering in patients with haemophilia (New path) | Heike Hawerkamp | |
| 16.55 – 17.05 | Analysis of FVIII reservoirs on cell surfaces and their potential impact on coagulation | Chistoph Königs | |
| 17.05 – 17.15 | Sexual functioning in men with haemophilia: measurement and communication | Lotte Haverman | |
| 17.15 – 17.25 | Examination of the acceptability of digitalisation of the Timed Up and Go test for remote assessment in people with haemophilia | Louise Crossley | |
| 17.25 – 17.55 | EAHAD Lifetime Achievement Awards 2025 and EAHAD honorary membership induction | Jan Blatny Flora Peyvandi Robert Klamroth | |
| 17.25 – 17.35 | Monica Gobbi (EAHAD Lifetime Achievement award) | ||
| 17.35 – 17.45 | David Lillicrap (EAHAD Lifetime Achievement award ) | ||
| 17.45 – 17.55 | Mike Makris (EAHAD Honorary Membership) | ||
| 17.55 – 18.05 | Poster awards and 2024 research grants awards | Ana Boban | |
| 20.00 – 00:00 | Networking Evening |
| 08.30 – 10.00 | SESSION 6 SLAM | Samantha Gouw Ana Boban |
| 10 abstracts selected for oral presentation | ||
| 10.00 – 10.30 | Coffee Break/Poster Viewing | |
| 10.30 – 11:30 | SESSION 7 EAHAD Activities | Niamh O’Connell Maria Teresa Alvarez Roman |
| 10.30 – 10.45 | EUHASS | Samantha Gouw |
| 10.45 – 11.00 | Glanzmann Disease Working Group update | Roger Schutgens, Glanzmann Working Group |
| 11.00 – 11.15 | Psychosocial principles of care in the age of GT | Lotte Haverman |
| 11.15 – 11.30 | WGBD+ update | Karin van Galen |
| 11:30 – 12:00 | AROSENIUS LECTURE 2025 | Fariba Baghaei |
| EAHAD – Paths to Progress | Christopher Ludlam | |
| 12:00 – 12:45 | Lunch Break | |
| 12.45 – 13.45 | SESSION 8 Aging population with rare bleeding disorders | Fariba Baghaei Pier Mannuccio Mannucci |
| 12.45 – 13.05 | Frailty in Haemophilia | William McKeown |
| 13.05 – 13.25 | Management of thrombosis in elderly patients with haemophilia | Cihan Ay |
| 13.25 – 13.45 | Psychosocial aspects of coping with aging in haemophilia | Christina Burgess |
| 13.45 – 14.50 | SESSION 9 Latest Clinical Trial Results Session | Jan Blatny Flora Peyvandi |
| To be announced in January 2025 | ||
| 14.50 – 15.15 | Closing remarks and Save the Date for EAHAD 2026 | Flora Peyvandi Niamh O’Connell |