Tuesday, 3 February 2026
12:00 – 13:00 | Registration and lunch |
13:00 – 15:00 | Joint Session This joint multidisciplinary session will address three intergenerational topics, each explored from the perspectives of nursing, physiotherapy, and psychosocial care. For each presentation, all three committee representatives will contribute | |
Family consultations | Gloria Rooney Grainne o’brien | |
13:00-13:05 | Opening message | Niamh O’Connell |
13:05-13:15 | Introduction and setting the scene | Christina Burgess & Gloria Rooney |
13:05-13:15 | Intergenerational guilt: grandfather with severe haemophilia | Grainne O’Brien & Gloria Rooney Mary Kavanagh Anne Juanos |
13:45-14:15 | Navigating complex family dynamics and treatment choices: mother of a child with severe haemophilia | Grainne O’Brien & Gloria Rooney Mary Kavanagh Anne Juanos |
14:15-14:45 | Supporting young people with haemophilia in leading active lives, balancing education and empowerment without instilling fear: young boy with severe haemophilia | Grainne O’Brien & Gloria Rooney Mary Kavanagh Anne Juanos |
14:45-15:00 | Discussion and wrap-up | |
15:00 – 15:30 | Break |
15:30 – 16:10 | Nurses SESSION 1 | ||
SLAM | Linda Myrin Westesson Malin Axelsson | ||
15.30-15.35 | Welcome | Maj Friberg Birkedal | |
15.35-15.41 | SLAM 1 | ||
15.41-15.47 | SLAM 2 | ||
15.47-15.53 | SLAM 3 | ||
15.53-15.59 | SLAM 4 | ||
16.00-16.10 | Q & A | ||
16:10-17:20 | Nurses SESSION 2 | ||
Distress | Mary Kavanagh Maj Friberg Birkedal | ||
16:10-16:40 | Procedure-related anxiety in children | ||
16:40-17:05 | Adults and distress | Grainne O’Brien | |
17:05-17:20 | Q&A | ||
17:20-17:50 | Break | ||
17:50-19:00 | Nurses SESSION 3 | ||
MASTERCLASS: MUCOSAL BLEEDS | Nanda Uitslager Karin Van Galen | ||
17:50-18:35 | Mucosal Bleeds | Nanda Uitslager Karin Van Galen | |
18:35-18:45 | Q&A | ||
18.45-19.00 | Star nurse & SLAM winner and closing remarks | Maj Friberg Birkedal | |
19:00 – 21:00 | Networking reception *With short speeches by the EAHAD Committees Chairs |
12:00 – 13:00 | Registration and lunch |
13:00 – 15:00 | Joint Session This joint multidisciplinary session will address three intergenerational topics, each explored from the perspectives of nursing, physiotherapy, and psychosocial care. For each presentation, all three committee representatives will contribute | |
Family consultations | Gloria Rooney Grainne o’brien | |
13:00-13:05 | Opening message | Niamh O’Connell |
13:05-13:15 | Introduction and setting the scene | Christina Burgess & Gloria Rooney |
13:05-13:15 | Intergenerational guilt: grandfather with severe haemophilia | Grainne O’Brien & Gloria Rooney Mary Kavanagh Anne Juanos |
13:45-14:15 | Navigating complex family dynamics and treatment choices: mother of a child with severe haemophilia | Grainne O’Brien & Gloria Rooney Mary Kavanagh Anne Juanos |
14:15-14:45 | Supporting young people with haemophilia in leading active lives, balancing education and empowerment without instilling fear: young boy with severe haemophilia | Grainne O’Brien & Gloria Rooney Mary Kavanagh Anne Juanos |
14:45-15:00 | Discussion and wrap-up | |
15:00 – 15:30 | Break |
15:30 – 16:10 | PHYSIOTHERAPISTS SESSION 1 | |
SLAM | Ruth Elise Dybvik Matlary | |
15.30-15.35 | Welcome | Ruth Elise Dybvik Matlary |
15.35-15.41 | SLAM 1 | |
15.41-15.47 | SLAM 2 | |
15.47-15.53 | SLAM 3 | |
15.53-15.59 | SLAM 4 | |
16.00-16.10 | Q&A | |
16:10-17:20 | PHYSIOTHERAPISTS SESSION 2 | |
Joint health: prehabilitation, intervention, recovery | Merel Timmer | |
16:10-16:30 | Prehabilitation/preparation for intervention | Kapo Demin |
16:30-16:50 | Radiosynovectomy – plan/pathway | Paul McLaughlin |
16:50-17:20 | Orthopaedic surgery – elbow rehab | Philip Arens |
17:20-17:50 | Break | |
17:50-19:00 | PHYSIOTHERAPISTS SESSION 3 | |
DEbate: All People with Bleeding Disorders should have an Annual Musculoskeletal Review | Magnus Asphdal | |
17:50-18:00 | Setting the Scene | Merel Timmer |
18:00-18:50 | Debate | Lize van Vulpen (in favour) Sébastien Lobet (against) |
18:50-19:00 | Q&A and Closing Remarks | |
19:00 – 21:00 | Networking reception and PT SLAM Winner *With short speeches by the EAHAD Committees Chairs |
12:00 – 13:00 | Registration and lunch |
13:00 – 15:00 | Joint Session This joint multidisciplinary session will address three intergenerational topics, each explored from the perspectives of nursing, physiotherapy, and psychosocial care. For each presentation, all three committee representatives will contribute | |
Family consultations | Gloria Rooney Grainne o’brien | |
13:00-13:05 | Opening message | Niamh O’Connell |
13:05-13:15 | Introduction and setting the scene | Christina Burgess & Gloria Rooney |
13:05-13:15 | Intergenerational guilt: grandfather with severe haemophilia | Grainne O’Brien & Gloria Rooney Mary Kavanagh Anne Juanos |
13:45-14:15 | Navigating complex family dynamics and treatment choices: mother of a child with severe haemophilia | Grainne O’Brien & Gloria Rooney Mary Kavanagh Anne Juanos |
14:15-14:45 | Supporting young people with haemophilia in leading active lives, balancing education and empowerment without instilling fear: young boy with severe haemophilia | Grainne O’Brien & Gloria Rooney Mary Kavanagh Anne Juanos |
14:45-15:00 | Discussion and wrap-up | |
15:00 – 15:30 | Break |
15:20 – 16:05 | Psychosocial Professionals SESSION 1 | |
Emerging mental health issues | Lotte Haverman | |
15:20-15:50 | Neurodiversity | |
15:50-16:05 | Relationships and Sexual Functioning | Tessa van Gastel |
16:10-17:20 | Nurses – Psychosocial Professionals SESSION 2 | |
Distress | Mary Kavanagh Maj Friberg Birkedal | |
16:10-16:40 | Procedure related anxiety in children | |
16:40-17:05 | Adults and distress | Grainne O’Brien |
17:05-17:20 | Q&A | |
17:20-17:50 | Break | |
17:50-19:00 | Psychosocial Professionals SESSION 3 | |
Psychosocial care at important transition points | Gloria Rooney | |
17:50-18:10 | Trauma-sensitive care for a new diagnosis | Gaby Golan |
18:10-18:30 | EAHAD European Psychosocial Principles for Gene Therapy | Lotte Haverman |
18:30-18:50 | EMDR | Petra Buckova |
18:50-19:00 | Discussion and Wrap-up | |
19:00 – 21:00 | Networking reception *With short speeches by the EAHAD Committees Chairs |