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Allied Health Professionals Day

Tuesday, 3 February 2026

12:00 – 13:00 Registration and lunch
13:00 – 15:00

Joint Session

This joint multidisciplinary session will address three intergenerational topics, each explored from the perspectives of nursing, physiotherapy, and psychosocial care. For each presentation, all three committee representatives will contribute

Family consultationsGloria Rooney
Grainne o’brien
13:00-13:05Opening messageNiamh O’Connell
13:05-13:15Introduction and setting the sceneChristina Burgess & Gloria Rooney
13:15-13:45Intergenerational guilt: grandfather with severe haemophiliaGrainne O’Brien & Gloria Rooney
Malin Axelsson
Anne Juanos
13:45-14:15Navigating complex family dynamics and treatment choices: mother of a child with severe haemophiliaGrainne O’Brien & Gloria Rooney
Malin Axelsson
Anne Juanos
14:15-14:45Supporting young people with haemophilia in leading active lives, balancing education and empowerment without instilling fear: young boy with severe haemophiliaGrainne O’Brien & Gloria Rooney
Malin Axelsson
Anne Juanos
14:45-15:00Discussion and wrap-up
15:00 – 15:30Break
15:30 – 16:10Nurses SESSION 1
SLAM Linda Myrin Westesson
Malin Axelsson
15.30-15.35WelcomeMaj Friberg Birkedal
15.35-15.41SLAM 1 
15.41-15.47SLAM 2 
15.47-15.53SLAM 3 
15.53-15.59SLAM 4 
16.00-16.10Q & A 
16:10-17:20Nurses SESSION 2
DistressMary Kavanagh
Maj Friberg Birkedal
16:10-16:40Procedure-related anxiety in childrenPiet Leroy
16:40-17:05Adults and distressGrainne O’Brien
17:05-17:20Q&A 
17:20-17:50Break
17:50-19:00Nurses SESSION 3
MASTERCLASS: MUCOSAL BLEEDSNanda Uitslager
Karin Van Galen
17:50-18:35Mucosal BleedsNanda Uitslager
Karin Van Galen
18:35-18:45Q&A 
18.45-19.00Star nurse & SLAM winner and closing remarksMaj Friberg Birkedal
19:00 – 21:00Networking reception
*With short speeches by the EAHAD Committees Chairs
12:00 – 13:00 Registration and lunch
13:00 – 15:00

Joint Session

This joint multidisciplinary session will address three intergenerational topics, each explored from the perspectives of nursing, physiotherapy, and psychosocial care. For each presentation, all three committee representatives will contribute

Family consultationsGloria Rooney
Grainne o’brien
13:00-13:05Opening messageNiamh O’Connell
13:05-13:15Introduction and setting the sceneChristina Burgess & Gloria Rooney
13:15-13:45Intergenerational guilt: grandfather with severe haemophiliaGrainne O’Brien & Gloria Rooney
Malin Axelsson
Anne Juanos
13:45-14:15Navigating complex family dynamics and treatment choices: mother of a child with severe haemophiliaGrainne O’Brien & Gloria Rooney
Malin Axelsson
Anne Juanos
14:15-14:45Supporting young people with haemophilia in leading active lives, balancing education and empowerment without instilling fear: young boy with severe haemophiliaGrainne O’Brien & Gloria Rooney
Malin Axelsson
Anne Juanos
14:45-15:00Discussion and wrap-up
15:00 – 15:30Break
15:30 – 16:10PHYSIOTHERAPISTS SESSION 1
SLAMRuth Elise Dybvik Matlary
15.30-15.35WelcomeRuth Elise Dybvik Matlary
15.35-15.41SLAM 1 
15.41-15.47SLAM 2 
15.47-15.53SLAM 3 
15.53-15.59SLAM 4 
16.00-16.10Q&A 
16:10-17:20PHYSIOTHERAPISTS SESSION 2
Joint health: prehabilitation, intervention, recoveryMerel Timmer
16:10-16:30Prehabilitation/preparation for interventionKapo Demin
16:30-16:50Radiosynovectomy – plan/pathwayPaul McLaughlin
16:50-17:20Orthopaedic surgery – elbow rehabPhilip Arens
17:20-17:50Break
17:50-19:00PHYSIOTHERAPISTS SESSION 3
DEbate: All People with Bleeding Disorders should have an Annual Musculoskeletal ReviewMagnus Asphdal
17:50-18:00Setting the SceneMerel Timmer
18:00-18:50DebateLize van Vulpen (in favour)
Sébastien Lobet (against)
18:50-19:00Q&A and Closing Remarks 
19:00 – 21:00Networking reception and PT SLAM Winner
*With short speeches by the EAHAD Committees Chairs
12:00 – 13:00 Registration and lunch
13:00 – 15:00

Joint Session

This joint multidisciplinary session will address three intergenerational topics, each explored from the perspectives of nursing, physiotherapy, and psychosocial care. For each presentation, all three committee representatives will contribute

Family consultationsGloria Rooney
Grainne o’brien
13:00-13:05Opening messageNiamh O’Connell
13:05-13:15Introduction and setting the sceneChristina Burgess & Gloria Rooney
13:15-13:45Intergenerational guilt: grandfather with severe haemophiliaGrainne O’Brien & Gloria Rooney
Malin Axelsson
Anne Juanos
13:45-14:15Navigating complex family dynamics and treatment choices: mother of a child with severe haemophiliaGrainne O’Brien & Gloria Rooney
Malin Axelsson
Anne Juanos
14:15-14:45Supporting young people with haemophilia in leading active lives, balancing education and empowerment without instilling fear: young boy with severe haemophiliaGrainne O’Brien & Gloria Rooney
Malin Axelsson
Anne Juanos
14:45-15:00Discussion and wrap-up
15:00 – 15:30Break
15:20 – 16:05Psychosocial Professionals SESSION 1
EMERGING MENTAL AND SOCIAL HEALTH ISSUESLotte Haverman
15:20-15:45Checklist from a social worker perspectiveKarolien Bartels
Gloria Rooney
15:45-16:05Relationships and Sexual FunctioningTessa van Gastel
16:10-17:20Nurses – Psychosocial Professionals SESSION 2
DistressMary Kavanagh
Maj Friberg Birkedal
16:10-16:40Procedure related anxiety in childrenPiet Leroy
16:40-17:05Adults and distressGrainne O’Brien
17:05-17:20Q&A 
17:20-17:50Break
17:50-19:00Psychosocial Professionals SESSION 3
Psychosocial care at important transition pointsGloria Rooney
17:50-18:10Trauma-sensitive care for a new diagnosisGaby Golan
18:10-18:30EAHAD European Psychosocial Principles for Gene TherapyLotte Haverman
18:30-18:50EMDRPetra Buckova
18:50-19:00Discussion and Wrap-up
19:00 – 21:00Networking reception
*With short speeches by the EAHAD Committees Chairs

Contact MCI Group – eahad@mci-agency.com

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© 19th Annual Congress of the European
Association for Haemophilia and Allied Disorders 2026
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