Tuesday, 3 February 2026
| 12:00 – 13:00 | Registration and lunch | |
| 13:00 – 15:00 | Joint Session This joint multidisciplinary session will address three intergenerational topics, each explored from the perspectives of nursing, physiotherapy, and psychosocial care. For each presentation, all three committee representatives will contribute | |
| Family consultations | Grainne O’Brien & Gloria Rooney | |
| 13:00-13:05 | Opening message | Niamh O’Connell |
| 13:05-13:15 | Introduction and setting the scene | Christina Burgess & Gloria Rooney |
| 13:15-13:45 | Intergenerational guilt: grandfather with severe haemophilia | Grainne O’Brien & Gloria Rooney Malin Axelsson & Celine Chenuel Anne Juanos |
| 13:45-14:15 | Navigating complex family dynamics and treatment choices: mother of a child with severe haemophilia | Grainne O’Brien & Gloria Rooney Malin Axelsson & Celine Chenuel Anne Juanos |
| 14:15-14:45 | Supporting young people with haemophilia in leading active lives, balancing education without instilling fear: teenage boy with severe haemophilia | Grainne O’Brien & Gloria Rooney Malin Axelsson & Celine Chenuel Anne Juanos |
| 14:45-15:00 | Discussion and wrap-up | |
| 15:00 – 15:30 | Break | |
| 15:30 – 16:10 | Nurses SESSION 1 | ||
| SLAM | Linda Myrin Westesson Renester Fenton | ||
| 15.30-15.35 | Welcome | Maj Friberg Birkedal | |
| 15.35-15.41 | How to improve adherence to visits, protocols, and procedures required in clinical trials? Literature review applied to haemophilia | Sara Garcia Barcenilla | |
| 15.41-15.47 | Implementation of a nursing-led remote evaluation for the assessment and prioritization of adolescents with heavy menstrual bleeding | Cristina Benedicto Moreno | |
| 15.47-15.53 | Impact of new haemophilia therapies on therapeutic patient education: a survey of French nurses | Céline Chenuel | |
| 15.53-15.59 | A nurse-led multidisciplinary approach to post-infusion gene therapy management | Deirdre Gorman | |
| 16.00-16.10 | Q & A | ||
| 16:10-17:20 | Nurses SESSION 2 | ||
| Distress | Mary Kavanagh Maj Friberg Birkedal | ||
| 16:10-16:40 | Procedure-related anxiety in children | Piet Leroy | |
| 16:40-17:05 | Adults and distress | Grainne O’Brien | |
| 17:05-17:20 | Q&A | ||
| 17:20-17:50 | Break | ||
| 17:50-19:00 | Nurses SESSION 3 | ||
| MASTERCLASS: MUCOSAL BLEEDS | Nanda Uitslager Karin Van Galen | ||
| 17:50-18:35 | Mucosal bleeds | Nanda Uitslager Karin Van Galen | |
| 18:35-18:45 | Q&A | ||
| 18.45-19.00 | Star nurse & SLAM winner and closing remarks | Maj Friberg Birkedal | |
| 19:00 – 21:00 | Networking reception | ||
| 12:00 – 13:00 | Registration and lunch | |
| 13:00 – 15:00 | Joint Session This joint multidisciplinary session will address three intergenerational topics, each explored from the perspectives of nursing, physiotherapy, and psychosocial care. For each presentation, all three committee representatives will contribute | |
| Family consultations | Grainne O’Brien & Gloria Rooney | |
| 13:00-13:05 | Opening message | Niamh O’Connell |
| 13:05-13:15 | Introduction and setting the scene | Christina Burgess & Gloria Rooney |
| 13:15-13:45 | Intergenerational guilt: grandfather with severe haemophilia | Grainne O’Brien & Gloria Rooney Malin Axelsson & Celine Chenuel Anne Juanos |
| 13:45-14:15 | Navigating complex family dynamics and treatment choices: mother of a child with severe haemophilia | Grainne O’Brien & Gloria Rooney Malin Axelsson & Celine Chenuel Anne Juanos |
| 14:15-14:45 | Supporting young people with haemophilia in leading active lives, balancing education without instilling fear: teenage boy with severe haemophilia | Grainne O’Brien & Gloria Rooney Malin Axelsson & Celine Chenuel Anne Juanos |
| 14:45-15:00 | Discussion and wrap-up | |
| 15:00 – 15:30 | Break | |
| 15:30 – 16:10 | PHYSIOTHERAPISTS SESSION 1 | |
| SLAM | Ruth Elise Dybvik Matlary |
|
| 15.30-15.35 | Welcome | Ruth Elise Dybvik Matlary |
| 15.35-15.41 | Reference values for the haemophilia joint health score in patients with severe haemophilia derived from the Canadian bleeding disorder registry | Khang Nguyen |
| 15.41-15.47 | Patterns of habitual physical activity among Irish children and adolescents with haemophilia | Paula Loughnane |
| 15.47-15.53 | Long-term survival of total hip and total knee arthroplasty in people with haemophilia | Gijs Aertssen |
| 15.53-15.59 | Revisiting blood-induced joint damage in Glanzmann’s Thrombasthenia: Evidence from a Retrospective Case Review of three patients | Thuvia Flannery |
| 16.00-16.10 | Q&A | |
| 16:10-17:20 | PHYSIOTHERAPISTS SESSION 2 | |
| Joint health: prehabilitation, intervention, recovery | Merel Timmer |
|
| 16:10-16:30 | Optimising outcomes: The role of prehabilitation in haemophilia. | Kapo Demin-Yu |
| 16:30-16:50 | Radiosynovectomy – plan/pathway | Paul McLaughlin |
| 16:50-17:20 | Orthopaedic surgery – elbow rehab | Philip Ahrens |
| 17:20-17:50 | Break | |
| 17:50-19:00 | PHYSIOTHERAPISTS SESSION 3 | |
| Debate: All people with bleeding disorders should have an annual musculoskeletal review | Magnus Aspdahl | |
| 17:50-18:00 | Setting the scene | Merel Timmer |
| 18:00-18:50 | Debate | Lize van Vulpen (in favour) Sébastien Lobet (against) |
| 18:50-19:00 | Q&A and closing remarks | |
| 19:00 – 21:00 | Networking reception and PT SLAM Winner |
|
| 12:00 – 13:00 | Registration and lunch | |
| 13:00 – 15:00 | Joint Session This joint multidisciplinary session will address three intergenerational topics, each explored from the perspectives of nursing, physiotherapy, and psychosocial care. For each presentation, all three committee representatives will contribute | |
| Family consultations | Grainne O’Brien & Gloria Rooney | |
| 13:00-13:05 | Opening message | Niamh O’Connell |
| 13:05-13:15 | Introduction and setting the scene | Christina Burgess & Gloria Rooney |
| 13:15-13:45 | Intergenerational guilt: grandfather with severe haemophilia | Grainne O’Brien & Gloria Rooney Malin Axelsson & Celine Chenuel Anne Juanos |
| 13:45-14:15 | Navigating complex family dynamics and treatment choices: mother of a child with severe haemophilia | Grainne O’Brien & Gloria Rooney Malin Axelsson & Celine Chenuel Anne Juanos |
| 14:15-14:45 | Supporting young people with haemophilia in leading active lives, balancing education without instilling fear: teenage boy with severe haemophilia | Grainne O’Brien & Gloria Rooney Malin Axelsson & Celine Chenuel Anne Juanos |
| 14:45-15:00 | Discussion and wrap-up | |
| 15:00 – 15:30 | Break | |
| 15:20 – 16:05 | Psychosocial Professionals SESSION 1 | |
| EMERGING MENTAL AND SOCIAL HEALTH ISSUES | Grainne O’Brien | |
| 15:20-15:45 | Checklist from a social worker perspective | Karolien Bartels Gloria Rooney |
| 15:45-16:05 | Relationships and sexual functioning | Tessa van Gastel |
| 16:10-17:20 | Nurses – Psychosocial Professionals SESSION 2 | |
| Distress | Mary Kavanagh Maj Friberg Birkedal | |
| 16:10-16:40 | Procedure related anxiety in children | Piet Leroy |
| 16:40-17:05 | Adults and distress | Grainne O’Brien |
| 17:05-17:20 | Q&A | |
| 17:20-17:50 | Break | |
| 17:50-19:00 | Psychosocial Professionals SESSION 3 | |
| Psychosocial care at important transition points | Gloria Rooney | |
| 17:50-18:10 | Trauma-sensitive care for a new diagnosis | Gaby Golan |
| 18:10-18:30 | EAHAD European psychosocial principles for gene therapy | Christina Burgess |
| 18:30-18:50 | The use of EMDR in treating anxiety and adjustment disorders in patients with haemophilia – A case study of a child and his mother | Petra Buckova |
| 18:50-19:00 | Discussion and Wrap-up | |
| 19:00 – 21:00 | Networking reception | |