Multidisciplinary Pre-Congress Day

Preliminary Programme | Tuesday, 4 February

12:00 – 13:00 REGISTRATION AND LUNCH
13:00 – 13:45 JOINT SESSION: Insight into the care of patients with rare bleeding disorders in the Netherlands
13:00 – 13:15 Welcome and Introduction K Fijn van Draat
13:15 – 13:45 Panel discussion:

Multidisciplinary and interdisciplinary care in the Netherlands: Differences, opportunities and challenges

Chair: P de Kleijn

S Andeweg
G Mulders
M Timmer
L Haverman

14:00 – 19:00 NURSES SESSIONS
14:00 – 15:00 SESSION 1: Nurse-led research: Stepping out of your comfort zone Chair: S Fletcher
14:00 – 14:20 How to create a good poster & how to choose a research topic K Khair
L Myrin Westesson
14:20 – 14:55 SLAM session (5 min – 5 speakers – 5 posters)
14:55 – 15:00 Interview and roundtable discussion with SLAM presenters
15:00 – 15:30 Break
15:30 – 17:00 SESSION 2: Bleeding disorders within the family Chair: S Grønhaug
15:30 – 16:00 Family legacy: Theoretical input G O’Brien
16:00 – 16:30 Family legacy: Learning from cases N Uitslager
16:30 – 17:00 Patients’ perspective: Interview with two women with bleeding disorders N Uitslager
M van der Ven
M Degenaar
17:00 – 17:30 Break
17:30 – 19:00 SESSION 3: Facilitating resilience and promoting mindfulness Chair: M Kavanagh
17:30 – 18:20 Facilitating resilience in nurses and patients P Bučková
18:20 – 18:50 Mindfulness for nurses and patients J Cleary
18:50 – 19:00 Closing remarks & Evaluation E Müller-Kägi
14:00 – 19:00 PHYSIOTHERAPISTS SESSIONS
14:00 – 15:15 SESSION 1: What are the challenges for the physiotherapist today? Chair: R E Matlary
14:00 – 14:20 Differentiating between osteoarthritis and haemophilic arthropathy L Van Vulpen
14:20 – 14:40 Establishing a joint injection clinic – perspectives of the physiotherapist M Bladen
14:40 – 15:00 Clinical implications of early detection of haemophilic arthropathy L Van Vulpen
15:00 – 15:15 Discussion with the audience
15:15 – 15:30 Break
15:30 – 17:00 SESSION 2: 5/10 Free Paper and 5/5 Case Study session Chair: S Lobet
15:30 – 16:20 Five 10-minute Free Paper presentations
16:20 – 16:30 Discussion with the audience
16:30 – 16:55 Five 5-minute Case Study presentations
16:55 – 17:00 Announcement of the winners
17:00 – 17:15 Break
17:15 – 18:45 SESSION 3: Hot Topic Debates Chair: P McLaughlin
17:15 – 17:45 Is ultrasound really helpful in clinical consultation or is it a trend? M Aspdahl – YES, it is helpful
D Stephensen – NO, it is a trend
17:45 – 17:50 Announcement of the winner
17:50 – 18:20 Should haemophilia patients attend physiotherapy sessions in their own HTC? E Mauser-Bunschoten – YES
P de Kleijn – NO
18:20 – 18:25 Announcement of the winner
18:25 – 18:55 “Give a man a fish and you feed him for a day; teach a man to fish and you feed him for life”: Manual therapy VS self-rehabilitation T Flannery – Manual therapy
S Lobet – Self-rehabilitation
18:55 – 19:00 Announcement of the winner
14:00 – 19:00 PSYCHOSOCIAL SESSIONS
14:00 – 15:20 SESSION 1: Relevant issues regarding well-being from childhood to adulthood
14:00 – 14:30 Children with bleeding disorders: what a child psychologist can do to help K Vandenabeele
14:30 – 14:40 Questions and discussion
14:40 – 15:10 My experience of running Wellbeing Workshops C Burgess
15:10 – 15:20 Questions and discussion
15:20 – 15:50 Break
15:50 – 17:50 SESSION 2: Psychological strategies to manage pain and promote sexual health
15:50 – 16:20 Principles of pain management in haemophilia patients G Golan
16:20 – 16:30 Questions and discussion
16:30 – 17:00 EMDR used for pain management C de Roos
17:00 – 17:10 Questions and discussion
17:10 – 17:40 Sexuality and haemophilia E Laan
17:40 – 17:50 Questions and discussion
15:20 – 15:50 Break
18:20 – 19:00 SESSION 3: Shaping psychosocial haemophilia care in Europe
18:20 – 18:50 Brainstorming session on building a network of psychosocial professionals in Europe: What can the EAHAD Psychosocial Group do for you? All
18:50 – 19:00 Closing remarks L Haverman
19:00 – 22:00 Networking Reception Dinner