Pre-Congress Day for Nurses, Physiotherapists and Psychosocial Professionals

Tuesday, 6 February 2018

10:30 – 17:30 PRE-CONGRESS DAY FOR NURSES, PHYSIOTHERAPISTS, AND PSYCHOSOCIAL PROFESSIONALS
10:30 – 13:00 MULTIDISCIPLINARY SESSION
10:30 – 10:45 Welcome Morning Theme: Caring for children and youngsters with haemophilia in Europe Víctor Jiménez, Cédric Hermans, Rubén Cuesta-Barriuso, Elsbeth Müller-Kägi
10:45 – 11:05 Caring for children and youngsters with haemophilia in Spain: Nurse’s perspective Sara García Barcenilla
11:05 – 11:25 Caring for children and youngsters with haemophilia in Spain: Physiotherapist’s perspective Sofía Pérez Alenda
11:25 – 11:45 Growing up with haemophilia: health related QoL and psychosocial functioning Perrine Limperg, Lotte Haverman
11:45 – 12:00 Discussion and Q&A
12:00 – 13:00 Multidisciplinary stepped case study Chair: Martin Bedford
13:00 – 14:00 LUNCH BREAK
14:00 – 17:30 PHYSIOTHERAPISTS SESSION
14:00 – 17:00 3 x 45 min Workshops
Workshop 1: Evidence of Orthopedic Manual Therapy in the treatment of chronic arthropathy Benjamin Hidalgo, Rubén Cuesta-Barriuso
Workshop 2: Exercise with multi joint arthropathy Paul McLaughlin
Workshop 3: Post bleed rehabilitation in children Paula Loughnane
17:00 – 17:30 Discussion and Wrap up
14:00 – 17:30 NURSES SESSION
14:00 – 15:00 Interactive break out sessions
For nurses new to haemophilia: Fundamentals of haemophilia Elsbeth Müller Kägi
For experienced nurses: Challenges of providing care outside of and between Haemophilia Treatment Centres Petra Elfvinge, Kristian Juusola
15:00 – 15:15 BREAK
15:15 – 17:00 Nurse-led Research Chair: Martin Bedford
15:15 – 15:45 Exploring non-adherence in adolescents with haemophilia Anne Hoefnagels
15:45 – 16:15 Experiences of being a father of a child with severe haemophilia Linda Myrin Westesson
16:15 – 17:00 Behind the scenes of nurse-led research Anne Hoefnagels, Linda Myrin Westesson
17:00 – 17:30 Discussion and Wrap up
14:00 – 17:30 PSYCHOSOCIAL SESSION
14:00 – 14:15 Welcome & Introduction Lotte Haverman, Perrine Limperg
14:15 – 14:45 Quality of life and Adherence: influence of psychosocial factors Ana Torres
14:45 – 15:15 Training program ‘Living with haemophilia’ Ruud Bos
15:15 – 15:45 Camps: another way to live with haemophilia Rocio Cid Sabatel
15:45 – 16:00 BREAK
16:00 – 16:30 KLIK for children with bleeding disorders Lotte Haverman
16:30 – 17:00 Pilot project of complex psychological care for adults with haemophilia Petra Buckova
17:00 – 17:30 Exchange of clinical experience/cases – future of psychosocial committee EAHAD – Wrap up
17:30 – 18:30 NETWORKING RECEPTION