Multidisciplinary Pre-Congress Day

Preliminary Programme | Tuesday, 5 February

11:00 – 13:00 JOINT SESSION (with Czech interpretation)
11:00 – 11:15 Welcome and Introduction
11:15 – 11:35 Nurses Presentation:
The ideal and the real role of the haemophilia nurse – Czech experience
V Cepelakova
11:35 – 11:55 Physiotherapists Presentation:
Important aspects of paediatric health to become a healthy adult
M Katzerova
11:55 – 12:15 Psychosocial Professionals Presentation:
Preventing psychosomatic consequences in bleeding disorders
P Buckova
12:15 – 13:00 Joint Case Discussion and Q&A All disciplines

13:00 – 14:00 Lunch

14:00 – 17:00 NURSES SESSION (with Czech interpretation)
14:00 – 15:30 Session 1 – Explaining complex medical concepts to patients living with bleeding disorders
14:00 – 14:20 What should nurses know regarding the coagulation cascade and new treatments? M Albisetti
14:20 – 14:35 Explaining the Clinical trial process to patients M Nolan
14:35 – 15:05 Health literacy S Sørensen
15:05 – 15:15 Q&A
15:15 – 15:30 Break
15:30 – 16:15 Session 2 – Innovative Approaches for Care Delivery
15:30 – 15:45 T-GROW Model of Communication M Friberg Birkedal
15:45 – 16:00 Distant care S Grønhaug
16:00 – 16:15 Eight years of nurse-led clinics M Kavanagh
16:15 – 16:30 Break
16:30 – 17:00 Session 3 – Is there a future for haemophilia nursing?
16:30 – 16:40 No, there will be no future M Bedford
16:40 – 16:50 Yes, there is a future K Juusola
16:50 – 17:00 The audience decides

14:00 – 17:00 PHYSIOTHERAPISTS SESSION (with Czech interpretation)
14:00 – 15:00 Session 1
14:00 – 14:45 Basics of radiological assessment useful for PTs H Marmery
14:45 – 15:00 Q&A
15:00 – 16:00 Workshops*
15:00 – 15:45 Workshop 1: Point of Care Ultrasound M Timmer
D Stephensen
 15:00 – 15:45 Workshop 2: Strengthening strategies in paediatrics according to DNS K Ptakova
15:45 – 16:00 Q&A
16:00 – 17:00 Workshops*
16:00 – 16:45 Workshop 1: Point of Care Ultrasound M Timmer
D Stephensen
 16:00 – 16:45 Workshop 2: Strengthening strategies in paediatrics according to DNS K Ptakova
16:45 – 17:00 Q&A

*To encourage interaction during the Workshops, participants will be split into two groups. Half of the group will first attend Workshop 1, then Workshop 2 and the other half of the group will attend the Workshops in the reverse order.

 

14:00 – 17:00 PSYCHOSOCIAL PROFESSIONALS SESSION (with Czech interpretation)
14:00 – 15:00 Session 1
14:00 – 14:45 Differences between the present and future through the new treatments G Golan
14:45 – 15:00 Q&A
15:00 – 16:00 Session 2
15:00 – 15:45 The effect of bleeding disorders on the wider family and caregivers C Burgess
15:45 – 16:00 Q&A
16:00 – 17:00 Session 3
16:00 – 16:45 The effect of growing up with haemophilia into adulthood A Torres-Ortuño
16:45 – 17:00 Q&A

17:00 – 18:00 Networking Reception

IMPORTANT: Pre-Congress Day registration requires a separate, additional fee and is not automatically included in the registration for the main congress.